Australia

How is SHAPE organised?

We aim to test a new training and support group for people in the early stages of dementia and e-learning programme for carers. This study is developed in collaboration with researchers in Norway and the United Kingdom, based on existing interventions using the principles of health promotion and self-management. We hope to place people with dementia at the centre of their care and teach skills for decision making, symptom management and healthy living.

Information about recruitment

We are looking to recruit individuals living in the community, with a formal diagnosis of dementia as well as their care partner (who could be a family member or friend) to participate in this study. Participants will be recruited from Mark Moran Group, Dementia Australia, NeuRA website and StepUp for Dementia Research. Read the full list of participation criteria.

What is involved in participation?

Participants in this study will be randomised into the intervention group or control group:

Intervention group

People with dementia will be invited to a training and support group led by 2 health professionals once a week for 10 weeks. Their care partners will not attend the group sessions but will receive an online program with similar training materials and support.

Control group

Participants will not receive the group training from our team but will have access to the online educational program after the study is complete. All participants (people with dementia and care partners in both groups) will be asked to attend 3 assessment sessions at NeuRA to answer questionnaires about their health and wellbeing.

Contact person for Shape Australia

Jessica Amos

Neuroscience Research Australia, Sydney

This is an EU Joint Programme – Neurodegenerative Disease Research (JPND) project. The project is supported through the National Health and Medical Research Council (NHMRC) and JPND – www.jpnd.eu

Our project partners