SHAPE is an international research project aiming to improve quality of life and well-being for people with early stage dementia.

What is SHAPE?

SHAPE stands for Self-management and HeAlth Promotion in Early-stage dementia with e-learning for carers.

The aim of SHAPE is to enhance the people with dementia’s belief in their own abilities to adapt and manage living with dementia. SHAPE provides a course with ten weekly group sessions for people with dementia where the participants will learn about dementia, decision-making, social interaction and healthy behaviours. Their care partners get information through an e-learning programme.

The SHAPE intervention is designed to meet the needs of people with dementia to maintain independence and dignity, improve health behaviours, plan the future together with the family and live well with the disease in their own home for as long as possible.

SHAPE is a randomised controlled trial. Norway, UK and Australia take part in the study. It is an EU Joint Programme – Neurodegenerative Disease Research project, JPND

People with mild to moderate dementia over the age of 65 can take part. They must have a care partner who is willing to participate. Read the full list of participation criteria

 

The SHAPE project is put on hold

Because of the COVID-19 pandemic the SHAPE project is put on hold.
For more information, please contact project leader Professor Ingelin Testad, or the national site coordinators.

For resources to support community and institutional Long-Term Care responses to COVID-19, click here

Participate

The recruitment of health care providers to deliver the SHAPE project is done differently in the three countries. Information specific to each country about the SHAPE intervention and participation can be found below.

Project timeline

The duration of the SHAPE project is three years. The start of the different phases of the project vary, depending on the participating health providers in Norway, UK and Australia. The first possible starting points for the different phases are:

Ongoing

Recruitment of health care providers

Recruitment of health care providers to deliver the SHAPE intervention. The health care providers will identify people with dementia and their care partners to take part in the intervention.

Dec 2019

Training of group facilitators

Training of group facilitators to run the group sessions for people with dementia

Jan 2020

Baseline data collection

Interviews with the participating people with dementia and their care partners

Jan 2020 -
Jan 2021

SHAPE intervention period

SHAPE intervention period with group sessions for people with dementia and e-learning for their care partners

Apr 2020

Follow-up data collection

There will be two follow-up interviews with the people with dementia and their care partners.
-The first follow-up interviews will be immediately after the course
-The second follow-up interviews will be 6 months after the first follow-up interviews

Why is SHAPE important?

For many people, a diagnosis of dementia can have a significant impact on confidence. It can really affect how well they feel able to cope with the challenges of everyday life. We’re investigating how we can best support and empower people to manage independently and to live as well as possible with dementia.

Linda Clare
Professor, University of Exeter

We will test whether the SHAPE intervention can enhance quality of life, postpone admittance to care home and be cost effective.

Ingelin Testad
Professor, leader of SESAM and of the SHAPE project

People with dementia need tailored information about dementia. To learn about dementia together with people who face similar challenges as themselves can be great support for many people

Carina Vrangen
Dementia resource team, Fredrikstad, Norway

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